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CPTwomen Key Issues: Update 2015
Category: Tubal.org News
Tags: Tubal ligation post tubal ligation syndrome PTLS sterilization Essure

CPTwomen Key Issues: Update 2015
by Susan Bucher, BSN

     Informed consent and female sterilization      Today women are still not being informed of the risks before tubal ligation and female sterilization. I find withholding information a misogynistic and barbaric practice. I find it as barbaric as female genital mutilation (FGM) as both relate to battery. When it is learned and understood that information is withheld about negative physical and hormonal side effects known by the medical community as post tubal ligation syndrome (PTLS), post sterilization syndrome (PPS), and implant syndrome,… it becomes evident and clear that consent is given under false pretenses.

          Information is withheld to persuade women to make the decision that the doctor wants them to make. Withholding information from women at the time of consent is an intentional fraud and doctors/organizations who state there are no side effects to tubal ligation and other forms of female sterilization are committing intentional fraud and misrepresentation. Withholding information constitutes forced (fraudulent) consent.

         Women in the USA today when learning that information was withheld from them do not immediately equate this to having been a victim of physical assault and battery nor completely understand  that they were forcibly sterilized. This might be because they were not carried away forcibly to the operating table kicking and screaming. Women in the US are lead to the operating table with a blindfold on.

          There is a long history of forced sterilization in the U.S. and this abuse continues today. The American College of Obstetricians and Gynecologists (ACOG) publicly denies to the public at large that tubal ligations cause conditions as post tubal ligation syndrome (PTLS) or hormonal imbalances. This issue can be directly compared to the tobacco companies withholding information from the public. The only difference here is when people developed health problems from smoking they were not required to return directly the tobacco people for help and health treatment. When women develop a post sterilization syndrome they have no choice but to return to the same ob-gyn doctors and their organization (the ACOG) that withheld the information from them initially.

         This issue could be also compared to the recent NFL’s head injury scandal. Watch: League of Denial: The NFL's Concussion Crisis. When viewing this documentary all one need to do is substitute the words “women” for ‘’players”, “ACOG” for “NFL”, and “post sterilization syndrome” for “concussion”. The adamant denial the NFL had regarding concussions could be compared to the steadfast denial the ACOG has towards post sterilization syndrome. Other similarities could be compared to how studies and research has been created and presented.

          Tubal ligation and female sterilization is known by the ACOG and their members to cause hormonal imbalances and other negative side effects. The ACOG does not deny that there are studies that show and prove side effects such as hormonal changes and pelvic pain occur in epidemic proportions. Side effects have been proven through clinical research and studies, and have been reported by health professionals and victims who have experienced side effects first hand after sterilization for decades. The ACOG is well aware of the cases and scientific reports, yet they refuse to publicly acknowledge the scientific findings or share this information with women. If publicly asked about post tubal syndrome or the proving studies they state that the studies are "unproven", have been "disproven", that there is "controversy", or that the this issue is "controversial" … Yes, they are right… it is controversial!

         The ACOG calls themselves, "The Women's Health Care Physicians" advocating (the) “highest standards of practice”. They have “ethics committees”. They are to have women's best interest in mind… (physical health and otherwise). They are to "watch out" for women and protect women's health… but then you learn that the ACOG and their members withholds this information from women undergoing tubal ligations and from the public at large. No one is informed before or afterwards.

Whistleblower Dr. Hufnagel, MD states, "This is a multimillion dollar industry and the boys KNOW they are hurting women…"

          The ACOG and their members know that when tubal ligation surgeries and sterilizations are performed that many of the women will be returning for second and third surgeries such as ablations, D&C’s (dilation and curettage) and hysterectomies because of side effects from the sterilization. The very same organization/ob-gyn doctors that withheld the information and profited by doing so then go on to profit again from the original consumer fraud. Women are not informed at the time of their sterilization that the surgery or procedure could create such conditions that would necessitate such treatments. Women are told at the time of these second and third surgical producers that their sterilization had in no way caused their health condition that necessitated such radical procedures. How twisted and barbaric is this? 

          The CPTwomen believe that tubal ligations should be made a choice to women as a form of birth control but with full consent. What we are is anti-doctors/ACOG/the medical community withholding information from women in order to force consent. The goal of the Coalition for Post Tubal Ligation Women (CPTwomen) is to put in place proper informed consent laws so that women may be properly and fully informed of all the known and possible risks before consenting to tubal ligation or female sterilization. In doing so we will be taking the final step towards ending this cycle of abuse.

 

The 3 types of Sterilization Regret
Category: Tubal.org News

It’s impossible to regret a decision when information was withheld from you and you were not given the information in order to base your decision. There is a word for this, but the word is not “regret”.
Susan Bucher, BSN  Founder CPTwomen

 

The 3 Types of Sterilization “Regret”
by Susan Bucher, BSN

          Female sterilization, tubal ligation, and medical devices and treatments which affect the fallopian tubes for the purpose of birth control are conceived to be permanent non-reversible forms of birth control. Tubal ligation (TL), sometimes called tubal sterilization, female sterilization or “tying the tubes”, is a surgical procedure in which a physician seals shut a woman’s fallopian tubes. This is done surgically using coagulation (burning the tubes). Female sterilization is also done by using a medical products such as a clips (Hulka or Filshie Clip), rings (bands), or an Ova Bloc, Adiana, or Essure type products to seal shut or block (obstruct) the fallopian tube. Other methods of sterilization includes bilateral salpingectomy (removal of both fallopian tubes) and using chemicals such as Atabrine or Mepacrine (also called quinacrine) which are placed into the uterus in pellet form then dissolve and scar the fallopian tubes causing the tubes to seal shut.

          All forms of female sterilization can cause negative health outcomes collectively known as "Post Sterilization Syndrome" (PSS) aka "Post Tubal Ligation Syndrome" (PTS) or (PTLS). For example, traditional tubal ligation can cause adenomyosis that manifests as dysfunctional uterine bleeding (DUB) which may require surgical remedies such as ablation, dilation and curettage (D&C), or complete hysterectomies to correct excessive bleeding. Tubal ligation can also affect the blood supply to the ovaries causing anovulation (ovaries failing to normally function or to ovulate), premature ovarian failure (POF), or sudden premature (surgical) menopause. If a medical device is used it could also create an “implant syndrome” which adds insult to injury. Clips, Ovabloc, and Essure type products are know to dislodge and migrate causing pain, bleeding, and other horrifying outcomes. Furthermore, these products are made with materials which can be toxic and/or cancerous. The point here is that all forms of female sterilization have known and potential negative side effects which women need to be informed of prior to consenting to sterilization.

          One side effect that women are universally informed of as being a possible risk of female sterilization is that of “regret”. This side effect is psychological in nature.  Regret is commonly referred to by the medical community to mean later wishing you could have more children. Many women suffer from regret because they later do desire to have more children.

          Regret could also mean regretting how undergoing the sterilization has changed ones physical (and mental) health. I have often hear women state, “I regret having had the tubal because of what it did to my...health…libido...etc…”  Then in the next breath they state, “I wish I had know this information before my sterilization”.  What these women don’t understand is calling this “regret” is a misnomer.  The term regret infers self-accusation, self-condemnation, and the blaming of oneself. It’s impossible to regret a decision when information was intently withheld from you and you were not given the information in order to base your decision. There is a word for this, but the word is not “regret”.

          The truth is because of an abuse of professional/corporate power and medical/corporate malfeasance (wrongdoing) these women in fact became victims of fraud and abuse. The abuse then escalates and occurs on many levels but all starts with the same action which is that of information being withheld. When it is learned and understood that information is withheld about negative physical and hormonal side effects known by the medical community (and the manufactures of products/drugs) as post sterilization syndrome (PPS) and implant syndrome, it becomes evident and clear that consent is given under false pretenses. Withholding information constitutes forced (fraudulent) consent.

          Women in the USA today when learning that information was withheld from them do not immediately equate this to having been a victim of physical assault and abuse nor completely understand  that they were forcibly sterilized. This might be because they were not carried away forcibly to the operating table kicking and screaming. Women in the US are lead to the operating table with a blindfold on.

          The statement, “I regret my decision to undergo sterilization because of what it did to my health, libido…” might be better stated as, “I regret having trusted my doctor,…the product,… the FDA….etc…”

          The third type of regret is the regret one has for not doing more to change the situation for future generations. The future regret of not speaking out, of not reporting what occurred or what is occurring, for not working to change the laws, etc….  The regret of not doing anything to end the cycle of abuse. 

week 2 post op
Category: Member Blogs
It's been 2 whole weeks! I feel like my old self! My incisions healed nicely but the area is still numb. Tomorrow is my post operation appointment, hoping it goes well. Some ptls symptoms are still around: fatigue mostly, but sometimes I get restless during the night, when I'm already asleep, it goes along with the insomnia I was experiencing. The nausea is gone, i used to wake up at 10am just to avoid morning nausea. Ibs is gone too. My sex drive is better but not nearly as good as before the tubal. Appetite is great! Starting to gain some weight, hopefully I can keep it up. I feel so much healthier now, it's awesome. Brain fog comes and goes, depends on the day. Hoping to update with better news next week.
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